Hello…

im-backDear readers, I do confess, it’s been seven months since my last posting… What can I say, other than a demented 18-month-old, a four-going-on-14-year-old and the paid work I can squeeze into the moments when they are both asleep (ha!) mean I have reluctantly neglected my station?

There’s been so much I’ve wanted to blog about, too. This has been the Year of the Allergy Mama on a Mission. Our grassroots campaign to fight Alpro’s decision to merge nut and soya milk production and slap a ‘may contain nuts’ warning on all their soya products resulted in victory when they backtracked and agreed to keep the lot, bar chilled yoghurts, free from cross contamination. Continue reading “Hello…”

The challenges of an egg challenge…

images-3TOMORROW we are going into hospital for a ‘baked egg challenge’. This means that Sidney will be fed a pre-baked, egg-containing muffin in incremental doses to see if he reacts.

Apparently 80 per cent of egg allergic children can tolerate baked (i.e. “extensively heated”) egg. Continue reading “The challenges of an egg challenge…”

Is she or isn’t she..?

IMG_7712SADIE-SOO is eight months old.

Aside from a panic at four weeks when she developed a horrid eczema-type rash across her face and neck (which disappeared three fraught weeks later, during which we were thinking ‘bloody brilliant, another allergy baby’) she has seemed, dare I say it, to be allergy free.

Weaning has gone well. We’ve introduced soya, dairy, banana and wheat and she’s stuffed the lot. No rashes, no hives.

Continue reading “Is she or isn’t she..?”

Pizza Express – could it be…?

UnknownBIG excitement among Coeliacs in recent months over the new Pizza Express gluten free pizzas, and rightly so. But so far I’ve held fire.

The company is among the best in providing allergen information on its website but, somewhat oddly, while it mentions garlic and mushrooms among them, sesame and lupin – two of the top 14 under EU guidance – are not listed. For obvious reasons Sid’s (relatively rare) allergies to chickpea, lentil and green pea are also not on the list. So I wanted to find out for sure the full list of ingredients in this new gluten free base, not least because chickpea flour, lupin, psyllium husk and all sorts pop up in many non gluten offerings. Continue reading “Pizza Express – could it be…?”

Scrambled eggs on Mother’s Day

It was a perfectly innocuous Mother’s Day breakfast that booted us into a new way of life. And the morning had started so well: just a couple of night-time wake-ups and a respectable 7am start from our five month-old baby boy. Flowers (pink and yellow) delivered to the door. Cards. A cup of tea in bed. And scrambled eggs on toast.

Then, not long after, we noticed an odd rash developing on his little stick legs: white, bumpy, like nettle stings. Within minutes the lumps had spread to his throat and chin. My husband was quick to act: he carries an EpiPen for a ridiculous list of food intolerances that transform him into Elephant Man when combined with vigorous exercise. He recognised the hives straight away and, taking no chances, got on the phone to the out of hours doc.  They said: “Call an ambulance.”

So the rest of my first Mother’s Day was spent, memorably enough, languishing in a Hackney A&E. A syringe full of antihistamine saw off the lumps and bumps but we were baffled as to what had caused this reaction when he was still solely breastfed. Was it the flowers? Pollen in the early spring air? Something in his eczema creams? The paediatric team couldn’t say, really: just go straight back to the GP or A&E if it happens again.

Barely a month later it did, and this time the cause was blindingly obvious. I gave him his first taste of banana. Within minutes there were red splodges where the mash had touched his skin, and soon hives had spread across his face and neck. So, another dash to the doc for antihistamines and a request, now, for specialist referral.

We were due to go on holiday to Greece just a couple of weeks later and the wait to see an allergy specialist on the NHS would be at least three months, we were told. Panicked as to what might have caused it, and worried about whether the next reaction would be more serious, we booked to see an NHS consultant privately.

He asked us to run through exactly what had happened on the morning of the first reaction. We blathered on about pollen and flowers, skin creams, floor cleaners. He asked what we had eaten. Scrambled eggs, we said. ‘That’ll be it’, he said. He hadn’t even eaten any, we protested, stupidly.

But the results of a skin prick test confirmed it: our baby was quite definitely allergic to egg. Apparently even the tiniest trace on our hands, unwittingly transferred to his skin when we were applying his creams, would have been enough to trigger the hives.

Of course we weren’t surprised when banana threw up a positive (though who the hell had ever heard of banana allergy?). Possibly wheat and latex, too, though the results were borderline. And the trump card – peanuts. Crap.

What’s it all about?

I’m Mum to a fully paid-up food allergic, EpiPen-toting tot. Current tally: egg, wheat, nuts, sesame, chickpeas, green peas and, yep, banana. Arrrggh.

It’s early days and we’ve just started tiptoeing around this new, weird world of food allergy. Amazingly, while there are some great resources out there, there seems to be very little practical advice on day-to-day living with a food allergic child.

This blog is an attempt to share my experiences and findings about everything from allergy-friendly recipes, products and places to go to the latest news and research. We live in London so it’ll be from a London perspective but I’ll try to chuck in any other info I find.

One thing I promise is no handwringing here – it’s totally disorienting, of course, but the aim is not to let food allergy rule our lives.

P.S. In my other life I’m a former newspaper journalist turned freelance writer working from home (with baby underfoot).

Alexa Baracaia